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What’s Life Been Like Since

Her Story is Over…Sort of

She is in Heaven Now

Still with Us

So Ends 2023

Happy Thanksgiving! (and hello hospice)
![[Updated] So I’m Working on Something for the Lewy Lean](https://caregiverintheraw.com/wp-content/uploads/2023/07/Screenshot-2023-07-19-at-8.02.59-AM1-440x264.jpg)
[Updated] So I’m Working on Someth...

FREE with Kindle Unlimited: The Essentia...

Take the Picture

This Shirt is Fantastic

Forgiveness – One of the Most Impo...

Tooth Infection

An Important Word

Lewy-versary – 9 Years

Bowel Incontintence

The Unseen 99

Watermelon Help

General Anesthesia – A Switch for ...

The Best Piece of Equipment We Have for ...

Dodging Tornadoes (Literally)

Hospital Again But This Time it was Me

Funny or Frightening?

The Magic Ingredient

Caregivers in Ukraine

You are Not Alone

Verbal Processing – It’s Dif...

Pusher Syndrome

Shut-In Together

This Was Hard to Read But It Clarified M...

I Don’t Look Forward to It

Six Years Ago Today

A Messy Day

The Other Hip Broke

8 Years In… Again

8 Years In

The Caregivers are There Too

Hypersensitivity to Pain

Saving Ahead For the Days to Come

Weight Loss Stage

Remembering that It’s Dementia

Ph.d in Dementia

Dreaming in Dementia – An Unpleasa...

Social Situations and your LO?

How You Think Matters

While the World Burns

The Mirror Looks Bad

Help with the Lewy Lean

What Do I Do When Not With You?

Respite Care – The Bittersweet Tru...

Drive at 5

Dementia and the Generations

Confirmed–Rotator Cuff Tear

MRI Scan

When “Don’t” DoesnR...

It’s 2021

2020 Comes to An End

Your Tone Matters More than Your Words

Whining and Whining and then Meowing

Reflecting on 7 Years of LBD

Neurotic Behavior, Frustration and Fear

The Terror of Overheating

The Prayer

Happy 4th of July on a Lonely Day

Last Time by Karen Kingsbury

Testing for Covid

The Family Doggy Died

Hide the Before and After Photo

Back Pain and Caregiving

Mother’s Day 2020

Thicker for Better Hydration

Remember the Picture

The Unwanted Overtaker

A New Prayer

The Heimlich (I Guess I Need Some Practi...

The Horror of a CoronaVirus Death

Coronavirus and Caregiving

5 Stages of Lewy Body Dementia

Unless you’ve been there…

Shoes and Swelling

Season of Hostility and “Persecuti...

Symptoms of Lewy Body Dementia

Learned Love

“I Didn’t Do It!!”

Love Protects – 1 Cor 13

Fearful of Offense

Fingernails

The Last Day of 2019

Our goal

Christmas 2019

Sometimes things go right

The Fight for Dignity

The ONLY happy place

Well-Intentioned Friends

Entering their World

The Water Obsession

Of Baby Dolls and Doggies

Update: Sept 11, 2019

PLEASE–Carry this Card (because Ha...

Joining their World

Love for the Generations

Tender Moments in Terrified Times

Sasquatch. Seriously.

To Avoid Self-Pity – Think on This...

Surgery #6

They call it “Showtime”

Mom is Changing – Fast

Jesus’ brothers and John and His M...

Praying for Simon

Globus and Caregiver Health

The Sleepless Nights Return

New Discovery (When We Thought She was G...

My Heart

A Season of God’s Graces

A Day of Good Things

Grrr… Daughter Bear

1 Year Celebration

The Other Side of the Heart

River people, Louis Vieux and More

We’re All Sick Around Here

The Day My Earth Tilted

Rumblings

Sacrifice is Giving up Something You Lov...

Dodged a Bullet

So Much Pain

A Hard Day

Prayers Appreciated – Hoping It...

What We Do in a Picture

What do you do all day?

Fading Things Need Glasses

Movies or Not – Last Night Was a B...

Seriously?

Remembering

Wow!! The Eclipse

The Re-Awakening

Hello, Wall

It’s a Climb

They are Still a Parent

Back in the Saddle

Going Forth

Lantern Fest

We’re Going Right this Time

The Orphan Train

The Swallow has found a Nest for Herself...

Fatigue and Demands

A Normal Day – Medical Appointment...

Just Want to be with Mom

Wrestling with Fear

The Wretching McDonald’s

The Purse Thing

Lost Control of the Wheel

Dealing with Unacceptable Decline

You’re Wrong!

Tired. I’m so tired of being tired...

Conceptual Ability

I’m a Bit Raw Today

There is Joy even in This

Dealing with Well-Intentioned Friends

Wheelchair Ramp – How to Figure th...

Caregiving Like You’ve Never Seen ...

Picture Care Phone Review

Is Lewy Body Dementia Reversible?

Dominos–A Wee Bit Shaky

Aquatic Therapy for the Elderly

Walker Tray Review–The Yunga &...

Medical Alert System Review

Finding Community in the Desert

Crucified Love of the Caregiver

Safely Transferring Loved Ones

Understanding Lewy Body Dementia

Drop Arm Commode

Capgras Syndrome and Dementia-Seeing Mul...

Dear Friend of a Caregiver

Understanding Medicare and Therapy Servi...

Occupational Therapy vs Physical Therapy...

How to Facilitate Sleep for your Loved O...

Good Grief Book–Finding Help in Ti...

Caregiver Facebook Groups: Are they Wort...

How to Fit your Walker/Cane Fit to your ...

General Anesthesia and Dementia–An...

5 Places for a Wheelchair Accessible Vac...

Is a Wheelchair Vacation Possible?

How to Manage Medications Quick & E...

My Mother in the Men’s Room

5 Ways to Help with Sundowning

THE Characteristic you MUST nurture as a...

DIY Homemade Laundry Detergent

Tall-Ette Extra Wide Toilet Seat Review

Gluten, Carbs and Such = Hallucinations?

A Change of Seasons

What Does it Look Like?

More than Conquerers

What does it look like?

The Lord is my Shade
- Tips and Helps
- Product Reviews
- Conditions to Understand
- Hospital Stays
Bowel Incontintence
by Caregiver in the Raw | Aug 27, 2022 | Caregiving Journey, Tips and Helps
Bowel incontinence is no joke and it comes at late stages. For us, since mom has broken her 3x...
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Watermelon Help
by Caregiver in the Raw | Aug 13, 2022 | Tips and Helps
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The Magic Ingredient
by Caregiver in the Raw | Mar 8, 2022 | Tips and Helps
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Saving Ahead For the Days to Come
by Caregiver in the Raw | Aug 7, 2021 | Tips and Helps
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Help with the Lewy Lean
by Caregiver in the Raw | Mar 20, 2021 | Tips and Helps
The Best Piece of Equipment We Have for This Season
by Caregiver in the Raw | May 27, 2022 | Product Reviews
Each season of caregiving means different pieces of equipment. For right now, the gold piece of...
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Picture Care Phone Review
by Caregiver in the Raw | Dec 6, 2016 | Product Reviews
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Walker Tray Review–The Yunga & the North American
by Caregiver in the Raw | Nov 25, 2016 | Product Reviews
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Medical Alert System Review
by Caregiver in the Raw | Nov 23, 2016 | Product Reviews
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Drop Arm Commode
by Caregiver in the Raw | Nov 16, 2016 | Product Reviews
Verbal Processing – It’s Different!!!
by Caregiver in the Raw | Feb 26, 2022 | Conditions to Understand
So many people don’t understand dementia and I have to remember I only understand because...
-
Pusher Syndrome
by Caregiver in the Raw | Feb 14, 2022 | Conditions to Understand
-
Hypersensitivity to Pain
by Caregiver in the Raw | Aug 29, 2021 | Conditions to Understand
-
Weight Loss Stage
by Caregiver in the Raw | Aug 7, 2021 | Caregiving Journey, Conditions to Understand
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Ph.d in Dementia
by Caregiver in the Raw | Jul 24, 2021 | Caregiving Journey, Conditions to Understand, Lewy Body Dementia
General Anesthesia – A Switch for LBD
by Caregiver in the Raw | Jun 16, 2022 | Hospital Stays
I went to a medical seminar for practioners and sure enough, this is confirmed. General...
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The Other Hip Broke
by Caregiver in the Raw | Jan 20, 2022 | Caregiving Journey, Hospital Stays
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Understanding Medicare and Therapy Services
by Caregiver in the Raw | Nov 14, 2016 | Hospital Stays
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Vacation With Loved Ones
LatestWe’re Going Right this Time
by Caregiver in the Raw | Jun 21, 2017 | Vacation With Loved Ones | 0
Such good news today. Mom can now walk at 50% which I hope will reduce some of the burden. ...
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The Orphan Train
by Caregiver in the Raw | Jun 21, 2017 | Vacation With Loved Ones | 0
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5 Places for a Wheelchair Accessible Vacation
by Caregiver in the Raw | Oct 30, 2016 | Vacation With Loved Ones | 0
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Is a Wheelchair Vacation Possible?
by Caregiver in the Raw | Oct 29, 2016 | Vacation With Loved Ones | 0
Book Reviews
Top RatedGood Grief Book–Finding Help in Time of Loss
by Caregiver in the Raw | Nov 11, 2016 | Book Reviews, Care for the Caregiver | 0
I used to work in a Christian bookstore and this small little book was a best-seller. I...
Poems
PopularMy Mother in the Men’s Room
by Caregiver in the Raw | Sep 18, 2016 | Poems | 0
By MB I took my mother far into the men’s room today, not because I’m making a...
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Crucified Love of the Caregiver
by Caregiver in the Raw | Nov 19, 2016 | Poems | 0
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Last Time by Karen Kingsbury
by Caregiver in the Raw | Jul 3, 2020 | Poems | 0
- Care for the Caregiver
The Questions You Didn’t Know to Ask
by Caregiver in the Raw | Jul 26, 2024 | Care for the Caregiver | 0
I tried to think of all the questions I would ever want to know when she was alive. But...
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Finding Community in the Desert
by Caregiver in the Raw | Nov 19, 2016 | Care for the Caregiver | 0
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Dear Friend of a Caregiver
by Caregiver in the Raw | Nov 15, 2016 | Care for the Caregiver | 0
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Good Grief Book–Finding Help in Time of Loss
by Caregiver in the Raw | Nov 11, 2016 | Book Reviews, Care for the Caregiver | 0
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Caregiver Facebook Groups: Are they Worth It?
by Caregiver in the Raw | Nov 7, 2016 | Care for the Caregiver | 0
Verbal Processing – It’s Different!!!
by Caregiver in the Raw | Feb 26, 2022 | Conditions to Understand | 0
So many people don’t understand dementia and I have to remember I only understand because...
Read MorePusher Syndrome
by Caregiver in the Raw | Feb 14, 2022 | Conditions to Understand | 0
The LBD journey is one of “syndromes” that you’ve never heard of. Syndromes...
Read MoreHypersensitivity to Pain
by Caregiver in the Raw | Aug 29, 2021 | Conditions to Understand | 0
I don’t know if I have covered this before, but those with neurological issues have a...
Read MoreWeight Loss Stage
by Caregiver in the Raw | Aug 7, 2021 | Caregiving Journey, Conditions to Understand | 0
Just got back from the doctor this week and confirmed that mom is losing weight. We’re not...
Read MorePh.d in Dementia
by Caregiver in the Raw | Jul 24, 2021 | Caregiving Journey, Conditions to Understand, Lewy Body Dementia | 0
I don’t hold a Ph.d in dementia, but I do have nearly a decade of beyond full-time...
Read More
When we entered into the world of dementia caregiving (Lewy Body Dementia), we thought we knew what to expect. But WE HAD NO IDEA. There were syndromes and behaviors that we did not even know about. It was a baptism of fire.
This books details what we wish we would have know, and how we deal with this things still.
Translation
YES - The book below is the one I wrote. It's a "just the facts you need to know." No stories, charts, or antyhing. I wrote it because as a caregiver, I was too tired to wade through heavy science and theory that other books offered. I just wanted the essentials in short chapters. It's the book I would have wanted. If that's what you need also, then here it is:
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Medical Disclaimer
The Material in this website is not in any way meant to be medical advice. ASK YOUR DOCTOR for any, all and every medical situation and need.
Affiliate
In order to be able to display images I have needed to become an Amazon Affiliate. What this means is that when you purchase through this site, I receive a small commission. 100% of anything I will give to my loved one. I want her to get back what was taken from her through illness.