Still with Us

Still with Us

It's been a bumpy while.  Several times we've been certain it is the end.  So much so that family are angry with me for calling them in to say their last good-bye.  ?! Anyway, she is still with us.  I'm glad for that.  There are some things that only take time to get...

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Nearing the End. 🙁

After 10 years of LBD I think my mom is nearing the end.  Her body has broken out in hives, she isn't eating or drinking, her fever keeps spiking.  Please say a prayer for us.

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So Ends 2023

So Ends 2023

In a few hours this year will be over.  I thought for sure mom wouldn't make it this year but she has.  Barely. She is not well.  She is on hospice.  And several times even today I checked to make sure she was still going.  She is.  And she could rally and make it a...

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Happy Thanksgiving!  (and hello hospice)

Happy Thanksgiving! (and hello hospice)

I hope you are having a great thanksgiving and enjoying the blessings of the last year. There's always good and bad things in every year. Where will we be in a year from now? Where will you be Thanksgiving 2024? I likely will not be in the same place. Last month we...

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[Updated] So I’m Working on Something for the Lewy Lean

[Updated] So I’m Working on Something for the Lewy Lean

There are times where my loved one's lean is so hard I have trouble feeding her.  That and it is a choking hazard.  So I'm working on a support system. I took an individual sized gatorade bottle and cut off the top part enough to slide it over her wheelchair.  Then I...

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Take the Picture

Take the Picture

It's been over 9 years a caregiver for me and in a few months it will be 10 years of mom struggling with these issues.  So where am I at? My computer crashed a couple of weeks ago and it could not be wiped.  I was able to get some things off before it crashed which...

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This Shirt is Fantastic

This Shirt is Fantastic

I was walking into Walmart when I someone with this on the back of their shirt.  I asked her if I could snap a picture and she agreed.  It's a shirt from where they work. Great job whoever did this one!    

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Tooth Infection

Tooth Infection

Tooth care is really important with people with dementias.  They tend not to take good care of their teeth, caregivers tend to drag their feet with assisting, and tooth and gum infections are rampant.  Regular dentist appointments matter.  For us that means taking her...

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An Important Word

An Important Word

The world is on fire.  Things are setting up for a huge collapse and/or terrible strife across the globe. Here's the thing--we've got to think of our loved ones.  Do you have extra briefs?  Extra food?  Extra medicine?  Extra toilet paper?  Extra medical supplies? ...

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Lewy-versary – 9 Years

Lewy-versary – 9 Years

It's been 9 years since Lewy exploded on the scene.  I was away at the time and did not enter the picture until 6 months later.  But it's been a wild, unexpected, dramatic 9 years.  Complete with 7 unexpected traumatic surgerires including 3 hip fractures, 1 femur...

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Bowel Incontintence

Bowel Incontintence

Bowel incontinence is no joke and it comes at late stages.  For us, since mom has broken her 3x (2x on one and 1x on the other), she cannot stand.  No longer can we get her into the bathroom in our older house to put her in the shower to clean her up.  It's in the...

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The Unseen 99

The Unseen 99

Imagine for a minute running a 100 mile ultra marathon.  People sort of know but they really don't know how hard it is.  They only see you at the last mile and wonder what's wrong with you.  Why aren't you running faster?  Why aren't you doing more?  Why aren't you...

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General Anesthesia – A Switch for LBD

General Anesthesia – A Switch for LBD

I went to a medical seminar for practioners and sure enough, this is confirmed.  General anesthesia is a switch for LBD.  Since then we try to use a spinal block for us since we learned this (she did a hip surgery with this).  Also learned that the LBDA.org people...

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Dodging Tornadoes (Literally)

Dodging Tornadoes (Literally)

It's tornado season and it is coming on strong.  With mom's latest hip fracture, tornado precautions have changed. We used to be able to take her downstairs as she could get in and out of the golf cart and we could drive her down to the basement door.  Not anymore. ...

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Hospital Again But This Time it was Me

Hospital Again But This Time it was Me

My health is bad and I get it.  I haven't taken care of myself over the last 8 years of caregiver.  The Before I look good and the After I look horrendous.  The season has been unbelievable difficult with extenuating circumstances beyond just caregiving. But then I...

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Funny or Frightening?

Funny or Frightening?

The other day at the bank I couldn't figure out how to get out the door.  It wouldn't do the automatic open thing.  It was a small thing and it had no automatic doors.  I asked the people how to get out of the door.  "Push!" they said. I'm sure I'm their laughingstock...

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Medical Disclaimer

The Material in this website is not in any way meant to be medical advice. ASK YOUR DOCTOR for any, all and every medical situation and need.

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In order to be able to display images I have needed to become an Amazon Affiliate. What this means is that when you purchase through this site, I receive a small commission. 100% of anything I will give to my loved one. I want her to get back what was taken from her through illness.