Neurotic Behavior, Frustration and Fear

Neurotic Behavior, Frustration and Fear

When my mom's neurotic behavior hits, it's hard to deal with.  If we're in the car she's opening everything, trying to open the door, ripping out the a/c vents, fiddling with everything...  It's a challenge. And today when I'm trying to feed her as that's the stage...

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The Terror of Overheating

The Terror of Overheating

Several times my mom has gone bonkers wanting to call 911, screaming, hitting the steering wheel when I'm driving, etc... I finally realized it was because she was getting too hot.  It seems like being too cold is uncomfortable, but being too hot is worth panicking...

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The Prayer

The Prayer

When I read LBD blogs of the dying process, it is nothing other than horrible.  From the beginning, this is the thing I've dreaded the most.  It's a horrific death. I have prayed that my mother would die peacefully.  Or some other way than choking, gasping for breath...

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Happy 4th of July on a Lonely Day

Happy 4th of July on a Lonely Day

It's the Fourth of July, our national celebration, and I admit I really would love to be part of a party or a group.  Lately I've found myself struggling with loneliness.  It comes with the territory.  The cumulative exhaustion of many years of caregiving is so far...

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Last Time by Karen Kingsbury

Last Time by Karen Kingsbury

This is about children, but I feel it can also be said of my mother.  One day I will have my "last times," and I won't even know that it will be the last. "Long ago you came to me, a miracle of firsts. First smiles and teeth and baby steps, a sunbeam on the burst. But...

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Testing for Covid

Testing for Covid

Lately I've struggled so hard to get out of bed.   The fatigue has been rough.  My muscles tense and sore.  And I've had other issues though no coughing or fever.  But concerned I called the health clinic and told them my symptoms.  They told me I'd better come in for...

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The Family Doggy Died

The Family Doggy Died

It's a sad day when your family doggy dies.  Mom cried for a few days and she kind of knows and kind of doesn't.  All day she kept calling to the doggy and telling the doggy to be careful.  She sort of knows and sort of doesn't. I think I'm affected more than her. ...

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Hide the Before and After Photo

Hide the Before and After Photo

I always want the before/after photo where the "after" looks amazing.  I didn't get that recently. Prior to this journey someone thought I was 18.  I had looped that number twice and then some.  And after years of caregiving someone the other day thought I was almost...

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Back Pain and Caregiving

Back Pain and Caregiving

I moved recently and during the move I wrenched my back somehow.  I've been bent over and hurting for over a week now.  And it makes caregiving really, really hard.  Hard to bend over, hard to lift her up, hard to transfer her.  Harder still is her constant needs that...

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Mother’s Day 2020

Mother’s Day 2020

The only thing that looked worse today than my mom was the family dog who has perhaps only days/weeks left to live.  Mom was tearful, fearful, confused and her legs just didn't want to work.   Getting her in and out of a car is becoming much more difficult. We went on...

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Remember the Picture

Remember the Picture

There are days like today where I feel like we are under the most severe caregiving issues of anyone I know.  There are many things people don't know about in this journey.  I feel crushed as I have many times, beyond the ability to keep going on.  And yet I remember...

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The Unwanted Overtaker

The Unwanted Overtaker

  While the brain knows what you should and shouldn't say or do as this isn't them or within their control, the frazzled exhausted body, mind and emotions after 6+ years seems to take over...

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A New Prayer

A New Prayer

When this journey happened upon us years ago, I began to research and saw that most LBD people died from aspiration/pneumonia.  The family had to decide whether to put a feeding tube in or let them die of pneumonia, starvation and dehydration.  I was utterly horrified...

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The Heimlich (I Guess I Need Some Practice)

The Heimlich (I Guess I Need Some Practice)

The other day mom started choking violently.  I leapt up and she indicated to perform the Heimlich maneuver.  On a more generous sized person it isn't as easy as you would think.  I tried a few times, slapped her on the upper part of her back and tried the Heimlich...

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The Horror of a CoronaVirus Death

The Horror of a CoronaVirus Death

It’s not just that someone dies from an awful pandemic. It’s worse. They die alone. No one to hold their hand. No one by their bedside. No one in that one moment of life where no one wants to be alone. Yes, someone can possible be in protective gear at the time. But...

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Coronavirus and Caregiving

Coronavirus and Caregiving

We just spent the last few days in the hospital.  Mom was so out of it and so we took her in to get fluids.  IV drop brought back to not baseline, but a new normal. In the midst the coronavirus is galloping around the world.  And I wonder is it safe that we have so...

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5 Stages of Lewy Body Dementia

5 Stages of Lewy Body Dementia

(Take from here) PHASE I POSSIBILITIES Most caregivers are concerned/worried that something is not right. Please note that symptoms from later stages can appear at this early phase. At the end of this phase, dementia is becoming difficult to deny Possible REM sleep...

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Unless you’ve been there…

Unless you’ve been there…

Lewy Body Dementia makes other dementias look like a cake-walk.  LBD on the other hand is wild.  You never know what to expect.  Could be tears and fears or doing well.  Anger and aggression or sleepy and stuperous.  Wanting to go, go, go and agitated or wanted to do...

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Medical Disclaimer

The Material in this website is not in any way meant to be medical advice. ASK YOUR DOCTOR for any, all and every medical situation and need.

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