What’s Life Been Like Since
It's hard to say. When my mother passed away it meant an immediate move. And that is a lot. For now it's been moving a lot and not sure where to settle. Mainly because it's something I could never think of as we never knew when she was going to go. I almost feel...
Her Story is Over…Sort of
It's really strange to think about when someone dies. But their life story is over. Everything they did, every word they said, every action they took or didn't take is finished. The book is closed. And there's the realization that the last words have been spoken. ...
She is in Heaven Now
My beautiful, kind, loving mother passed away March 28, 2024. Ten years to the week I came home to take care of her. She really did pass peacefully. No feeding tubes. No troubled breathing. No hospitalization. Just quietly at home in the middle of the night...
Still with Us
It's been a bumpy while. Several times we've been certain it is the end. So much so that family are angry with me for calling them in to say their last good-bye. ?! Anyway, she is still with us. I'm glad for that. There are some things that only take time to get...
Nearing the End. 🙁
After 10 years of LBD I think my mom is nearing the end. Her body has broken out in hives, she isn't eating or drinking, her fever keeps spiking. Please say a prayer for us.
So Ends 2023
In a few hours this year will be over. I thought for sure mom wouldn't make it this year but she has. Barely. She is not well. She is on hospice. And several times even today I checked to make sure she was still going. She is. And she could rally and make it a...
Happy Thanksgiving! (and hello hospice)
I hope you are having a great thanksgiving and enjoying the blessings of the last year. There's always good and bad things in every year. Where will we be in a year from now? Where will you be Thanksgiving 2024? I likely will not be in the same place. Last month we...
[Updated] So I’m Working on Something for the Lewy Lean
There are times where my loved one's lean is so hard I have trouble feeding her. That and it is a choking hazard. So I'm working on a support system. I took an individual sized gatorade bottle and cut off the top part enough to slide it over her wheelchair. Then I...
FREE with Kindle Unlimited: The Essential Guide to Dementia Caregiving
It's not the path I originally intended, but there is a way to still get it free. If you have Kindle Unlimited, for a time you can get the book free on there. If you don't have Kindle Unlimited, you can get a free 30 day trial and then get the book free. Also in...
Take the Picture
It's been over 9 years a caregiver for me and in a few months it will be 10 years of mom struggling with these issues. So where am I at? My computer crashed a couple of weeks ago and it could not be wiped. I was able to get some things off before it crashed which...
This Shirt is Fantastic
I was walking into Walmart when I someone with this on the back of their shirt. I asked her if I could snap a picture and she agreed. It's a shirt from where they work. Great job whoever did this one!
Forgiveness – One of the Most Important Practices of a Caregiver
Caregiving is not like what most os us expect. There are many things that do not go like we had hoped or planned. Family that we thought would help...don't, people say the most terrible things if you take care of your loved one at home and not in a nursing facility,...
Tooth Infection
Tooth care is really important with people with dementias. They tend not to take good care of their teeth, caregivers tend to drag their feet with assisting, and tooth and gum infections are rampant. Regular dentist appointments matter. For us that means taking her...
An Important Word
The world is on fire. Things are setting up for a huge collapse and/or terrible strife across the globe. Here's the thing--we've got to think of our loved ones. Do you have extra briefs? Extra food? Extra medicine? Extra toilet paper? Extra medical supplies? ...
Lewy-versary – 9 Years
It's been 9 years since Lewy exploded on the scene. I was away at the time and did not enter the picture until 6 months later. But it's been a wild, unexpected, dramatic 9 years. Complete with 7 unexpected traumatic surgerires including 3 hip fractures, 1 femur...
Bowel Incontintence
Bowel incontinence is no joke and it comes at late stages. For us, since mom has broken her 3x (2x on one and 1x on the other), she cannot stand. No longer can we get her into the bathroom in our older house to put her in the shower to clean her up. It's in the...
The Unseen 99
Imagine for a minute running a 100 mile ultra marathon. People sort of know but they really don't know how hard it is. They only see you at the last mile and wonder what's wrong with you. Why aren't you running faster? Why aren't you doing more? Why aren't you...
General Anesthesia – A Switch for LBD
I went to a medical seminar for practioners and sure enough, this is confirmed. General anesthesia is a switch for LBD. Since then we try to use a spinal block for us since we learned this (she did a hip surgery with this). Also learned that the LBDA.org people...
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