The Other Hip Broke
A few years ago she shattered her one hip and 6 surgeries later, we were able to save the leg. Truly a miracle. It doesn't have strength to it but it is still there. Then this past weekend she fell and broke her other hip. Surgery went well but as anyone with LBD,...
8 Years In… Again
Whew! That previous post I couldn't hardly type. I thought it was me just being excessively tired, but then I realized it was the medicine I was on. It was so bad I had to get off the medicine. Part of the caregiver journey is figuring out our own health as well....
8 Years In
It's officially been 8 years since my loved one had Lewy explode on the scene. Eight years. Some I have talked to are at 10 years. I know this journey for others can last for 15 years. You never know how long the journey will be but it typically is 10 years +/- 3...
The Caregivers are There Too
When I see horrific earthquakes in Haiti, I remember that there are caregivers there that are exhausted and trying hard to care for their loved ones in the midst of crisis. When I see everything changing in Afghanistan, I remember that there are caregivers there in...
Hypersensitivity to Pain
I don't know if I have covered this before, but those with neurological issues have a hypersensitivity to pain, especially touch. When you barely touch them and they cringe in pain, it's real. Neurological issues irritate the nerve fibers. So be gentle. Of course...
Weight Loss Stage
Just got back from the doctor this week and confirmed that mom is losing weight. We're not sure if it's loss of appetite, loss of caloric intake, or the body is starting to shut down. There's not enough information yet. We just keep keep giving her anything and...
Remembering that It’s Dementia
Dementia is a beast and it brings out the best in our loved ones and the worst. It's as if everything is magnified. That's a problem when it's the things that have been hurtful and hard in the past, and now that is bad. It's easy to loose patience and forget that...
Ph.d in Dementia
I don't hold a Ph.d in dementia, but I do have nearly a decade of beyond full-time experience as one who has taken care of someone night and day with dementia. The other day I spotted someone who clearly seems to have dementia, but it is undiagnosed and others don't...
Dreaming in Dementia – An Unpleasant Reality
It's well known that dementia is very hereditary, especially among women. And lately I've been dreaming things that are similar to my mother's open-eye delusions. It's not a comforting sign. I don't want to write a story like Flowers for Algernon. It's something to...
Social Situations and your LO?
When was the last time you saw an elderly person being fed by someone in public? For me, I don't think I've ever seen it. And I think why is that they are either in a nursing home, or people don't take elderly dependents out in public that need help. If they are...