2020 Comes to An End
For some this year was extremely disruptive. For me, it wasn't. It was the crises of caregiving as usual. Perhaps it's a blessing in disguise. Being a caregiver means being a recluse pretty much. There's not time for friends, especially making new ones when...
Your Tone Matters More than Your Words
It's a hard day when you are sick and your loved one is exhibiting psychotic and neurotic behavior and needing extra help. You don't want to move but you must. At least we have to. Our loved one is 100% dependent. Harder yet is to not lose patience when it takes 10...
Whining and Whining and then Meowing
Oh my. We have hit a new stage of hours of whining. I checked everything like food, thirst, bathroom needs, pain, etc... All was well. Just the bad habits of life magnified. Just as the good ones are as well (my mother is the most considerate person I know). So I...
Reflecting on 7 Years of LBD
It's now 7 years since my mom's mental health exploded with LBD. I only started blogging in 2016 but it started before then. It's just that in 2016 things got really bad with broken hips, femur, infections, drama and more. Oh my that was a bad year. It's the kind...
Neurotic Behavior, Frustration and Fear
When my mom's neurotic behavior hits, it's hard to deal with. If we're in the car she's opening everything, trying to open the door, ripping out the a/c vents, fiddling with everything... It's a challenge. And today when I'm trying to feed her as that's the stage...
The Terror of Overheating
Several times my mom has gone bonkers wanting to call 911, screaming, hitting the steering wheel when I'm driving, etc... I finally realized it was because she was getting too hot. It seems like being too cold is uncomfortable, but being too hot is worth panicking...
The Prayer
When I read LBD blogs of the dying process, it is nothing other than horrible. From the beginning, this is the thing I've dreaded the most. It's a horrific death. I have prayed that my mother would die peacefully. Or some other way than choking, gasping for breath...
Happy 4th of July on a Lonely Day
It's the Fourth of July, our national celebration, and I admit I really would love to be part of a party or a group. Lately I've found myself struggling with loneliness. It comes with the territory. The cumulative exhaustion of many years of caregiving is so far...
Last Time by Karen Kingsbury
This is about children, but I feel it can also be said of my mother. One day I will have my "last times," and I won't even know that it will be the last. "Long ago you came to me, a miracle of firsts. First smiles and teeth and baby steps, a sunbeam on the burst. But...
Testing for Covid
Lately I've struggled so hard to get out of bed. The fatigue has been rough. My muscles tense and sore. And I've had other issues though no coughing or fever. But concerned I called the health clinic and told them my symptoms. They told me I'd better come in for...
The Family Doggy Died
It's a sad day when your family doggy dies. Mom cried for a few days and she kind of knows and kind of doesn't. All day she kept calling to the doggy and telling the doggy to be careful. She sort of knows and sort of doesn't. I think I'm affected more than her. ...
Hide the Before and After Photo
I always want the before/after photo where the "after" looks amazing. I didn't get that recently. Prior to this journey someone thought I was 18. I had looped that number twice and then some. And after years of caregiving someone the other day thought I was almost...
Back Pain and Caregiving
I moved recently and during the move I wrenched my back somehow. I've been bent over and hurting for over a week now. And it makes caregiving really, really hard. Hard to bend over, hard to lift her up, hard to transfer her. Harder still is her constant needs that...
Mother’s Day 2020
The only thing that looked worse today than my mom was the family dog who has perhaps only days/weeks left to live. Mom was tearful, fearful, confused and her legs just didn't want to work. Getting her in and out of a car is becoming much more difficult. We went on...
Remember the Picture
There are days like today where I feel like we are under the most severe caregiving issues of anyone I know. There are many things people don't know about in this journey. I feel crushed as I have many times, beyond the ability to keep going on. And yet I remember...
The Unwanted Overtaker
While the brain knows what you should and shouldn't say or do as this isn't them or within their control, the frazzled exhausted body, mind and emotions after 6+ years seems to take over...
A New Prayer
When this journey happened upon us years ago, I began to research and saw that most LBD people died from aspiration/pneumonia. The family had to decide whether to put a feeding tube in or let them die of pneumonia, starvation and dehydration. I was utterly horrified...
The Heimlich (I Guess I Need Some Practice)
The other day mom started choking violently. I leapt up and she indicated to perform the Heimlich maneuver. On a more generous sized person it isn't as easy as you would think. I tried a few times, slapped her on the upper part of her back and tried the Heimlich...

