When I read LBD blogs of the dying process, it is nothing other than horrible.  From the beginning, this is the thing I've dreaded the most.  It's a horrific death. I have prayed that my mother would die peacefully.  Or some other way than choking, gasping for breath...

It's the Fourth of July, our national celebration, and I admit I really would love to be part of a party or a group.  Lately I've found myself struggling with loneliness.  It comes with the territory.  The cumulative exhaustion of many years of caregiving is so far...

Lately I've struggled so hard to get out of bed.   The fatigue has been rough.  My muscles tense and sore.  And I've had other issues though no coughing or fever.  But concerned I called the health clinic and told them my symptoms.  They told me I'd better come in for...

It's a sad day when your family doggy dies.  Mom cried for a few days and she kind of knows and kind of doesn't.  All day she kept calling to the doggy and telling the doggy to be careful.  She sort of knows and sort of doesn't. I think I'm affected more than her. ...

I always want the before/after photo where the "after" looks amazing.  I didn't get that recently. Prior to this journey someone thought I was 18.  I had looped that number twice and then some.  And after years of caregiving someone the other day thought I was almost...

I moved recently and during the move I wrenched my back somehow.  I've been bent over and hurting for over a week now.  And it makes caregiving really, really hard.  Hard to bend over, hard to lift her up, hard to transfer her.  Harder still is her constant needs that...

The only thing that looked worse today than my mom was the family dog who has perhaps only days/weeks left to live.  Mom was tearful, fearful, confused and her legs just didn't want to work.   Getting her in and out of a car is becoming much more difficult. We went on...

There are days like today where I feel like we are under the most severe caregiving issues of anyone I know.  There are many things people don't know about in this journey.  I feel crushed as I have many times, beyond the ability to keep going on.  And yet I remember...

  While the brain knows what you should and shouldn't say or do as this isn't them or within their control, the frazzled exhausted body, mind and emotions after 6+ years seems to take over...

When this journey happened upon us years ago, I began to research and saw that most LBD people died from aspiration/pneumonia.  The family had to decide whether to put a feeding tube in or let them die of pneumonia, starvation and dehydration.  I was utterly horrified...

The other day mom started choking violently.  I leapt up and she indicated to perform the Heimlich maneuver.  On a more generous sized person it isn't as easy as you would think.  I tried a few times, slapped her on the upper part of her back and tried the Heimlich...

It’s not just that someone dies from an awful pandemic. It’s worse. They die alone. No one to hold their hand. No one by their bedside. No one in that one moment of life where no one wants to be alone. Yes, someone can possible be in protective gear at the time. But...

We just spent the last few days in the hospital.  Mom was so out of it and so we took her in to get fluids.  IV drop brought back to not baseline, but a new normal. In the midst the coronavirus is galloping around the world.  And I wonder is it safe that we have so...

Lewy Body Dementia makes other dementias look like a cake-walk.  LBD on the other hand is wild.  You never know what to expect.  Could be tears and fears or doing well.  Anger and aggression or sleepy and stuperous.  Wanting to go, go, go and agitated or wanted to do...