Whew!  That previous post I couldn't hardly type.  I thought it was me just being excessively tired, but then I realized it was the medicine I was on.  It was so bad I had to get off the medicine.  Part of the caregiver journey is figuring out our own health as well....

It's officially been 8 years since my loved one had Lewy explode on the scene.  Eight years.  Some I have talked to are at 10 years.  I know this journey for others can last for 15 years.  You never know how long the journey will be but it typically is 10 years +/- 3...

When I see horrific earthquakes in Haiti, I remember that there are caregivers there that are exhausted and trying hard to care for their loved ones in the midst of crisis. When I see everything changing in Afghanistan, I remember that there are caregivers there in...

Dementia is a beast and it brings out the best in our loved ones and the worst.  It's as if everything is magnified. That's a problem when it's the things that have been hurtful and hard in the past, and now that is bad.  It's easy to loose patience and forget that...

It's well known that dementia is very hereditary, especially among women.  And lately I've been dreaming things that are similar to my mother's open-eye delusions.  It's not a comforting sign.  I don't want to write a story like Flowers for Algernon. It's something to...

When was the last time you saw an elderly person being fed by someone in public?  For me, I don't think I've ever seen it.  And I think why is that they are either in a nursing home, or people don't take elderly dependents out in public that need help.  If they are...

When you tell others you are a caregiver, or tell friends things you've done, how is it that you are telling them?  This week I run into another caregiver and every time I have, she speaks that she is deeply annoyed at having to be a caregiver.  And to her credit, she...

The world is on fire for so many reasons right now.  Everyone blaming everyone and that's happening within countries, between countries and more.  We are a globe filled with people heading for a collision in the very near future.  I'm not here to point fingers, I'm...

I look absolutely dreadful after 7 1/2 years of caregiving and it's still going.  The before and after are astounding in a bad way--black circles, heavy weight gain, deep creases in forehead, from normal hair to gray.  People just don't understand what it takes.  ...

As I'm looking for a job, we set up respite care to come in for a bit.  This week was Day 1 and I spent a bit of time training the new person, and then left.  It was so strange.  I had several hours to myself and I felt...so...lost. Every minute of my life for the...

Times are changing.  We are frazzled.  We tried respite care before and it didn't work well.  It stressed mom out.   We're trying again.  And I'm having to look for a job outside of caring for mom now. And I want to cry. I want to be the one to be there.  I don't want...

One-armed caregiving has been a little bit of challenge.  Mainly because the slightest wrong movement takes my breath away and brings tears to my eyes.  A rotator cuff tear is painful.  Just about an hour ago I slipped on the snow and grabbed the stair railing.  It...

It's now confirmed.  I've torn my rotator cuff.  Will need supernatural help from the Lord to continue to care for mom, transfer her and be the caregiver I need to be.  Without damaging my shoulder further.  God is able.

Seems like the years of transferring someone with Lewy Body Dementia has caught up with my arm.   Too many transfers or too many saves.  I don't know.  I'm in pain. Went to the doctor and looking to get an MRI scheduled this week.  How is this supposed to work?  How...

Dear God, have mercy on us all.  Please.