You’re Wrong!
One thing about caregiving and working with someone who is recovering from dementia is the confusion. It's so frustrating for our loved ones that we don't understand what they're trying to say. It gets tiring for us to also be treated like we are just clueless. ...
Tired. I’m so tired of being tired.
That's all.
Conceptual Ability
When the brain takes a hit, so does it's ability to conceptualize. When that happens the only thing a person sees is what is real. This past week I've several times told mom during a couch-to-chair transfer to "move back." For me that clearly means move backward in...
I’m a Bit Raw Today
Raw. It's why I named this blog "Raw." Because caregivers are often in this state. I woke up irritated at those who say, "I know how you feel. I know what it's like." No, you don't. When you, dear other person, were taking care of somebody their physical and mental...
There is Joy even in This
Tonight I sit here watching my mother sleep as she is freshly out of surgery. Her incision is so long I couldn't fit it into the frame of the picture. Her surgery so extensive that I could hardly explain it. A journey ahead that we know all too well, and yet not at...
Dealing with Well-Intentioned Friends
As caregivers, emotional energy is in short supply. At the same time there are many friends who love us and want to help. Some of them help in good ways, and others, not so much. Before it gets bad, here are some lessons I learned. From the beginning you will need...
Caregiving Like You’ve Never Seen it Before. Wow.
Is Lewy Body Dementia Reversible?
When we first realized my loved one had lewy body dementia, I scoured the internet with one question: Is it Reversible? I searched the internet far and wide and the only things I read literally made me scream into the air, "No! No! No!" I read of no hope...
Dominos–A Wee Bit Shaky
So tonight my loved and I played Dominos. It's touch and go whether it's doable or not and tonight it was more go. She was confused by the rules but still was able to play. Frustration built up to the point where she wanted to quite. This was not a successful game...
Crucified Love of the Caregiver
by MB Those black circles under my eyes? They're not pretty to you, but they're actually halos of love. Not the mushy, starry eyed kind but the love that says I'll do what it takes to love her with all I have. That fragrance you smell when I'm around? It's not...
Safely Transferring Loved Ones
Different issues such as strokes, obesity and neurological disorders mean that safely transferring loved ones is a challenge and a priority. There are two main focuses on transfers: 1) Preventing injury to the love one through a fall or otherwise, 2) Preventing an...
Understanding Lewy Body Dementia
What is Lewy Body Dementia? If there ever was a marriage between Parkinson's Disease and Alzheimer's, Lewy Body Dementia would be their troubled child. It has a separate pathology than other dementia's and is characterized by hallucinations, terrors, confusion in...
Capgras Syndrome and Dementia-Seeing Multiples
Capgras Syndrome is a nasty, awful syndrome where there are multiples of you and everything else. And the real person is always the imposter or the substitute. I HATE Capgras syndrome. It's exhausting, frustrating and tests your love. Thankfully, my love is deep....
Understanding Medicare and Therapy Services
Understanding Medicare as it affects Physical, Occupation and Speech Therapy Services Medicare is split into two parts, Part A and Part B. With Medicare A therapists are required to provide 720 minutes of therapy per week between 2 to 3 of the disciplines of...
Occupational Therapy vs Physical Therapy–What is the Difference?
Knowing the difference between occupational therapy vs physical therapy can help you understand the services your loved one needs. It also helps to understand how Medicare interacts with each of these services but we will save that for a later post. What is the...
Good Grief Book–Finding Help in Time of Loss
I used to work in a Christian bookstore and this small little book was a best-seller. I can't say I've read it as I'm not sure I want to read it right now. We are in stage of LBD and things are a little more real than I want them to be. The book is on amazon and...
General Anesthesia and Dementia–An Unhappy Marriage
Anesthesia and Dementia Disclaimer and Everything Else: This is NOT medical advice or suggestions, just personal experience. Consult your doctor beforehand as this is not meant to be prescriptive in any way, shape or form. General anesthesia and dementia are not...
How to Manage Medications Quick & Easy
How to Manage Medications and Pill Bottles Learning ways to manage medications can be a challenge! A couple of months ago I had several pillboxes that didn't fit big pills so much so that one of them I couldn't shut the lids. Then the inevitable happened. You...