Lately I’ve struggled so hard to get out of bed.   The fatigue has been rough.  My muscles tense and sore.  And I’ve had other issues though no coughing or fever.  But concerned I called the health clinic and told them my symptoms.  They told me I’d better come in for a test.

Thankfully I’m covid free.  My body is just reacting to life.  In the last 30 days I’ve moved, my car completely died, our dog died, there was a wedding I was a part of, mom was in the hospital for a day, and more.  This is life outside with someone with LBD and doesn’t take into account the psychotic and neurotic behavior of LBD (very different from other dementias).

This journey is not for the faint of heart.  It takes supernatural grace.  Every single day.